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Name: Edna

Age: 56

Medium: Written/Spoken Word


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I have lived with spasticity for close to 30 years. For most of that time, it was not known that the spasticity was related to MS. About a year ago, MRI’s were taken, other tests were done and MS was diagnosed. I can say that in a strange way, I was relieved. The cause of the spasticity in my legs for so many years was finally diagnosed. Now it was time for treatment to begin.

As all that suffer with this condition know, it is very hard to explain to anyone what is happening to our bodies, but it is what I can honestly call “nerve wracking.” Your emotions suffer, your ability to do what you would like to do suffers, and your ability to just say to your spouse, “let’s go for a long ride,” just does not happen. Because in my case, it is not possible due to spasticity.

With our adult children, spouses and grandchildren no closer than 1 1/2 hours from our home, and as far as 8 hours away, it makes it very difficult to be hands-on grandparents. But as I tell everyone, we do the best we can and treasure every minute we are able to be with them, and the phone lines stay hot.

Yes, it is a difficult life, but not impossible. Yes, it does take courage, but you can persevere. My motto has been for many years “One Day At A Time!” With the love and support from my dear husband, from my family, church family, and many friends, I can’t lose. Through it all, I know my God is in control and He watches over me and guides me moment by moment as I journey through this life with MS and spasticity.
Easter Seals NSCIA Well Spouse Association United Cerebral Palsy Medtronic National Multiple Sclerosis Society WE MOVE NFCA American Stroke Association Brain Injury Association of America National Stroke Association