My daughter Chloe is only 5 years old but has had more therapies, doctor appointments, test, work ups and surgeries than most people. Chloe has Cerebral Palsy Spastic Depligia. She has always been tight and mostly her stiffness was not controllable with her medications, but she is a fighter. Chloe smiles through her grueling therapies. Laughing as the PT’s painfully would bend her legs and stretch her muscles. Her upbeat personality is truly a blessing in helping all of our family deal with her disability.
Chloe has come so far in her short time. She learned how to combat crawl and then how to four point crawl. (Remember this takes a lot of time and patience.) Our therapist found other options that I had never heard of. She recommended that we go see a Baclofen Pump specialist. They explained to us that a computer pump will be put into her body and will give off small dosages of medication every hour.
This was a grueling decision. How does a parent decide to put their child on a surgeon’s table? After many weeks of thinking and researching we decided that Chloe deserves the opportunity.
It’s been 4 months since the surgery. When people ask “How is it helping Chloe?” my first answer is that Chloe finally looks comfortable in her body. Her fingers are looser. Her legs can be separated and sometimes she will just look so relaxed. She is really improving in therapy. We see no limit to what she could possibly accomplish.
It’s a long road ahead and I know it’s not always easy, but Chloe is a hard worker and she fills every person she meets with a happiness. Her potential for a full happy life was always there. She continues tirelessly to push herself to be better, stronger and happier. She is an amazing person and my daughter Chloe is only 5 years old.
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For important safety information related to ITB Therapy please click here
 Important Safety Information Related to ITB Therapy and the SynchroMed II System
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.
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